Privacy Policy

The Fund For Cures UK, Ltd. (‘The Company’, ‘we’, ‘us’ or ‘our’) is committed to respecting your privacy and rights under data protection laws. This policy (together with any other terms that we agree with you) sets out the basis upon which we may hold and use your personal data.

This policy applies to all personal data that you provide to us and that we collect about you (including any personal data that we receive from third parties).

Who this Privacy Policy applies to

This Privacy Policy applies to personal data that we hold and process about:

  • Users of our websites; (including www.FundforCures.org.uk, www.HarringtonDiscovery.org, www.smartsimple.com, www.planisware.com);
  • Reviewers;
  • Subscribers to our newsletter, newsletter administrators who manage subscriptions;
  • Participants at events we host, sponsor or attend;
  • Grant Applicants and Funders; and
  • Individuals who interact with us in other ways and whose personal data we hold and use in connection with those interactions.
  • The personal data we collect and how we use it

We collect personal information so that we can operate effectively and provide you with the best possible service. The information we collect depends on the nature of your interactions with us and how you use our services. It also depends on the choices you make, for example your marketing preferences and other privacy settings. You may choose not to provide certain information but if you do, and that information is necessary in order to provide a particular feature or service, then that feature may not function properly and we may be unable to provide you with the service.

If you are a Website User:
Browsing and viewing publicly accessible areas of the website does not require you to submit personal information to us. However, in order to receive email notices, submit applications, create a user account or access certain other features, services, and parts of the website, you may be required to submit personally identifiable information (e.g. your name, postal address, email/social media address, telephone number, job title, qualifications, areas of scientific interest, and any personal data contained in log-in/user account details and contained in any submissions/postings you make to the website and in any further correspondence with us).


In addition to any information that you provide, we may collect cookies and website analytics information about visits to our website. We collect this information in order to enhance your website experience, identify you when you re-visit the website and to improve the performance and impact of our websites and (subject to any necessary consents) to share information about our application process and services.

Our lawful basis for holding and using this personal data is the legitimate interests of The Company as a not-for-profit organisation dedicated to supporting and inspiring the biological community.

Where a Reviewer, Website User or other correspondent expresses an opinion about another identifiable person, that information may be the personal data of that other person. The Company reserves the right (at its discretion) to delete or anonymise such personal data, but may be obliged to amend, delete or provide a copy of such personal data to that other person in response to a data subject request (see Section 6 below).

We may combine the information that you provide or that we collect in relation to any of the above activities with other information in order to enable us to provide a more streamlined service to you.

We may undertake other monitoring and we may, as necessary, undertake any data processing that is necessary in order to comply with our legal obligations and to assist any relevant legal and regulatory authorities.

We will only use your personal information for the purposes for which we collected it or to which you have consented, unless we may legitimately use it for a related reason which is compatible with the original purpose.

Sharing your information

We may disclose your personal data as described above. We may share your information with selected third party service providers that support us in the performance of our activities, or where we have another legitimate interest in doing so. For example, to investigate a complaint, to protect our users or to operate and maintain the security of our computer systems. We will only share your information in accordance with applicable law.

For residents of countries within the European Union, if we transfer your personal data outside the European Economic Area (EEA), we will comply with the law to ensure that your personal information remains adequately protected.

Length of storage for your information

We will only retain your personal information for as long as is necessary to fulfill the purposes we collected it for, including for the purposes of satisfying any legal, accounting or reporting obligations.  Retention periods of ten years or longer may apply to grant application and scientific study information or in relation to intellectual property rights where a transfer or permission could continue to be valid for many years.

We may also store your personal information for as long as necessary to complete any transaction enquiry with you. Where a transaction is aborted, we will normally store relevant information for at least one year following the last recorded interaction between the parties involved (unless a longer retention period applies in line with our document retention practices).

In some circumstances we may anonymise your personal information so that it can no longer be associated with you, in which case we may use such information without further obligation to you.

Information Security

We have put in place appropriate technical and security measures to protect your information. The transmission of information via the internet is not completely secure. Although we will do our best to protect your personal information, we cannot guarantee the security of the information transmitted to our site and you acknowledge that any transmission is at your own risk.

You are responsible for keeping confidential any passwords that you have to access our services. Please do not share your password(s) with anyone else. If you lose control of your password you may lose control over your personal information. If your password has been compromised for any reason please let us know immediately by contacting us here

Your personal data rights

Subject to certain conditions, you have the right under data protection laws to access personal data held about you, to object to its processing and/or to request its rectification, deletion or transfer to another data controller.

Please send us your enquiry here for details of how to exercise these rights.

We may need to request specific information from you to help us confirm your identity and ensure your right to access the information (or to exercise any of your other rights).

Withdrawing your consent

In the limited circumstances where you may have provided your consent to the collection and use of your personal data for a specific purpose, you have the right to withdraw your consent for that specific processing at any time. To withdraw your consent, please contact  us here. Once we have received notification that you have withdrawn your consent, we will no longer process your information for the purpose(s) you originally agreed to, unless we have another legitimate basis for doing so in law. This does not apply to withdrawing your consent to receive marketing communications which may be done without restriction at any time (see Section 8 below).

You may modify your data preferences here or get further information by writing to the Data Protection Officer, Fund For Cures UK, Ltd., 11-12 St. James’s Square, London SW1Y 4LB, UK.

Marketing communications and suppression lists

We wish to continue informing you of our programs and opportunities and we will do our best to make sure that our contact with you is relevant. If you have an online subscriber user account with us, then please use it to update your contact details. Otherwise, please let us know of any changes to your contact details here.

Should you wish to withdraw your consent to receive marketing communications, you may do so at any time by contacting us here, or by clicking on the ‘unsubscribe link’ in any emails that you receive from us. We aim to process unsubscribe requests as quickly as possible, however it may take up to four weeks to be removed from all our mailing lists.

How to contact us and complaints

The Fund For Cures UK, Ltd. (Register Charity number 1185863) is the data controller in respect of your personal data. Our office is located at 11-12 St. James’s Square, London SW1Y 4LB, UK.

If you have any questions or concerns about this Privacy Policy or how we handle your personal data, please contact our Data Protection Officer here

If for any reason you are not happy with the way that we have handled your concern, you have the right to make a make a complaint to the Information Commissioner’s Office.

Changes to this privacy policy

We keep our privacy policy under regular review and will post any updates on this webpage. This privacy policy was last updated in 8 January, 2020.

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